The team at Pathfinders is made up of, and led by, people from the communities we represent, including our trustees. There are lots of opportunities to become a part of the team at Pathfinders, including jobs, freelance opportunities, and volunteering.
We are currently recruiting for trustees – if you are interested in applying, please contact Sarah, our Chairs of Trustees or use our contact form.
Sarah Rose – Chair
Sarah Rose is a co-Chair of Trustees. She lives in East Sussex in her own home with support from a team of PAs. She completed a degree in English Language and Linguistics, and then a Masters in Education. After these achievements, she worked in a school as a Language Support Assistant for 7 years. Sarah is currently a forum moderator for another MD charity and does research and campaign work for an advice organisation. In her free-time Sarah also likes writing, making cards and doing crosswords.
Vicky Mozley
Vicky is 42 years old, and as well as being a trustee for Pathfinders Neuromuscular Alliance, she works as an online Beauty Ambassador for L’Oreal.
She was born with Congenital Myopathy, which is a general neuromuscular condition that affects her muscles, including her respiratory system. She has used a wheelchair and ventilator since she was a child.
She lives in East Sussex, and enjoys spending her spare time watching films, listening to audiobooks, playing online games and walking her assistance dog, a yellow labrador called McLaren.
Daniel Baker
Daniel has been a member of a few charities over the years and helped out in various ways. He has also been a trustee of two charities, DROP, a local charity focused on both physical and mental health conditions. He was trustee, and co-chair of DMD Pathfinders, for several years, but after the charity had expanded and become Pathfinders Neuromuscular Alliance he stood down and took a break for a while to recharge. Daniel has always been passionate about speaking up for others with disabilities and showing that we can live fulfilling lives, being interviewed various times over the years or writing articles and even appeared briefly in the BBC/Netflix drama Requiem.
Daniel says: “I am now happy to have returned to Pathfinders Neuromuscular Alliance as a trustee and am looking forward to helping shape the future of the charity”.
Jobs and Volunteering
Pathfinders prioritises recruiting people with muscle-weakening conditions, so if you’re looking for work, keep a close eye on our website, and see if anything comes up. As well as regular employment, there are also often freelance roles available.
We also have a range of voluntary opportunities, from consultancy for organisations to social media and outreach, media ambassadors to authors and researchers.