Latest Articles

Team of powerchair football players in a green kit. 6 sat in powerchair football chairs with green or white metal attachments around their feet and two coaches sat in wheelchairs

Latest Articles

The picture shows our chair of trustees Sarah, a white woman with a neuromuscular condition. She is wearing a Santa hat and black jumper, using non-invasive ventilation. She is at home with a Christmas tree in the background.

Pathfinders Christmas Message

Dec 20, 20242 min read

As the festive season arrives, we want to take a moment to thank each and every one of you for your incredible support throughout the year. Your involvement, encouragement, and…

A changing places toilet

Pathfinders Research Wrapped: Pee Math & Disabled Researchers

Dec 16, 20247 min read

BY QUINN CLARK Hello folks! Welcome to Pathfinders Research Wrapped: where our Research Team picks their favourite muscle-weakening condition-based research done this year and delivers it to you, broken down…

Wicked – Defying Attitudes

Wicked – Defying Attitudes

Dec 6, 20244 min read

Our UpLift team member and film fan Connor shares his thoughts on disability representation in the new Wicked film. Despite the musical Wicked premiering on Broadway in 2003, it took…

Pathfinders expresses concern over Terminally Ill Adults (End of Life) Bill

Pathfinders expresses concern over Terminally Ill Adults (End of Life) Bill

Nov 22, 20245 min read

Pathfinders Neuromuscular Alliance strongly urges MPs to vote against the Second Reading of the *Terminally Ill Adults (End of Life) Bill* and oppose this bill outright.  We represent a community…

A warcraft character, a human man dressed in black with a beard and ponytail

If Ibelin had met Masaraeth

Oct 27, 20247 min read

Our CEO Jon, a fellow WoW gamer with Duchenne shares his own story after watching The Remarkable Life of Ibelin on Netflix. “We weren’t as rare as you think. WoW…

Major concerns over the future of adult neuromuscular care in Northern Ireland

Major concerns over the future of adult neuromuscular care in Northern Ireland

Feb 23, 20243 min read

We have joined forces with Muscular Dystrophy UK and Spinal Muscular Atrophy UK (SMA UK) to raise concerns of people living with muscle wasting and weakening conditions as a result…