Karen Hoe lives in Lincolnshire with her family, including her 23 year-old son, who has DMD.

Karen is a disability rights ambassador, equality and inclusion advocate, campaigner, and activist. She works as the National Campaign Manager for the Changing Places toilet campaign at Muscular Dystrophy UK, and as a freelance consultant, trainer, and advocate with various charities across the disability sector, work for which she was awarded an OBE in 2019.

She has experience and knowledge across access and inclusion, legislation, funding, and education, health and social care. She has been the Chair of Governors at a specialist school for disabled pupils for five years, and a national representative for Parent-Carer forums for eight years.

In her limited spare time, she enjoys going to gigs, concerts, and festivals, eating out, and catching up with friends.