General
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Reflecting on My time at Pathfinders
BY JAMIE HALE Hello! It feels odd to be writing this now, four months after finishing at Pathfinders. Some major life events just as I was leaving meant that I never quite left the way…
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Deputy CEO Recognised in Kings Honours List
We are delighted to announce that our Deputy CEO, Michaela Hollywood has been awarded an MBE in the Kings first Birthday Honours List. Michaela has been a central part of the community of people living…
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Getting A Disabled Facilities Grant – My Experience
I might be able to run an organisation, but I’m dreadful with paperwork. This meant that getting a ceiling track hoist put in was quite a considerable workload. Whilst I had a gantry hoist in…
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‘Who Cares?’ – Hiring A PA Pros & Cons from Sanjeev
My name is Sanjeev and I am a journalist, producer, and development worker for Pathfinders, with Duchenne Muscular Dystrophy. Like many with a neuromuscular condition, I rely on other people like carers, personal assistants, family,…
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DMD Cardiac Care
For people with DMD, having good cardiac care is crucial. Heart problems are common, but by looking after yourself, staying on top of your medical treatment, and seeking advice where need, you can help your…
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‘Who Cares?’ – Care Agency Pros & Cons from Sanjeev
My name is Sanjeev Mann, and I am a journalist, producer, and development worker for Pathfinders, with Duchenne Muscular Dystrophy. Like many with a neuromuscular condition, I rely on other people like carers, personal assistants,…