Advice: Health
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Ventilation and Powercuts
We are currently updating our resources, but you can download our guide on managing power interruptions when on ventilation here:
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DMD Cardiac Care
For people with DMD, having good cardiac care is crucial. Heart problems are common, but by looking after yourself, staying on top of your medical treatment, and seeking advice where need, you can help your…
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COVID-19 Statement and FAQ
There has been considerable anxiety amongst people with neuromuscular conditions about the risks of COVID-19. While there have been anecdotal reports of people developing COVID-19 and recovering, any source of respiratory infection is very concerning…
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Living With a Feeding Tube
What is a feeding tube? A feeding tube delivers a nutrient feed directly into the stomach or intestine. This allows an adult with a muscle-weakening condition to meet their nutritional needs without chewing or swallowing…
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The Nutrition Timeline for People with DMD
The nutrition timeline shows people with DMD’s nutritional needs changing as they grow up. As Duchenne progresses, nutritional issues also change. It’s important to ensure that people’s nutritional needs are met, whilst recognising that being…
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How to Eat a Healthy Diet
In general, adults with neuromuscular disorders should strive to have a healthy diet. A healthy diet is balanced in energy, protein, fluid, calcium, vitamin D, and other nutrients. Adults should aim to include a variety…